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P.L. 110-361, The Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008 (1 comment ↓ | 9 wiki edits)
H.R. 5265 would amend the Public Health Service Act to provide for research with respect to various forms of muscular dystrophy, including Becker, congenital, distal, Duchenne, Emery-Dreifuss facioscapulohumeral, limb-girdle, myotonic, and oculopharyngeal, muscular dystrophies.
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There was no up-or-down vote in the House.
There was no up-or-down vote in the Senate.
Trackbacks for This Bill
A Swarm of New Laws
Our “Silly Season” series of posts featured the laws racing across the House floor in the waning days of Congress’ regular session. Now it’s time to see what bills were passed into law. Mind you, not all of them are silly. B...URL: http://www.washingtonwatch.com/blog/2008/10/13/a-swarm-of-new-laws/
Trackback URL: http://www.washingtonwatch.com/bills/trackback/110_PL_110-361.html
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Visitor Comments
Marie Pichaske
This bill does for muscular dystrophy what NIH did not do: namely - it funds research - muscle does not have an Institute of its own and NIH treats each of their Institutes like little fifedoms - they protect what is theirs - and fund dieseases they have always funded.
Until NIH has a more equitable way of deciding what diseases to fund and how much - this bill is the only hope that that a treatable disease will get a treatment.