H.R. 1113 would expand the research, prevention, and awareness activities of the National Institute of Diabetes and Digestive and Kidney Diseases and the Centers for Disease Control and Prevention with respect to inflammatory bowel disease.
Detailed Summary
Inflammatory Bowel Disease Research Enhancement Act - Requires the Director of the National Institute of Diabetes and Digestive and Kidney Diseases to expand, intensify, and coordinate the Institute's research activities on inflammatory bowel disease, with an emphasis on: (1) genetic research on susceptibility for inflammatory bowel disease; (2) research targeted to increase knowledge about the causes and complications of inflammatory bowel disease in children; (3) animal model research; (4) clinical research; (5) expansion of the Institute's Inflammatory Bowel Disease Centers program with a focus on pediatric research; and (6) other research initiatives identified in specified documents.
Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) develop a system to collect data on pediatric inflammatory bowel disease; (2) establish the National Pediatric IBD Registry; and (3) establish the Advisory Committee on Pediatric Inflammatory Bowel Disease to study and make recommendations relating to the Registry.
Requires the Director of the Centers for Disease Control and Prevention (CDC) to prepare a National Inflammatory Bowel Disease Action Plan to: (1) address the burden of inflammatory bowel disease in both adult and pediatric populations; (2) address strategies for determining the unique demographic, geographic, and environmental-exposure characteristics of the inflammatory bowel disease population; (3) focus on strategies for increasing awareness about the disease within the general public and the health care community; and (4) address mechanisms designed to prevent the progression of the disease and the development of complications.
Status of the Legislation
Latest Major Action: 2/27/2007: Referred to House subcommittee. Status: Referred to the Subcommittee on Health.
Points in Favor
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Points Against
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Visitor Comments
Michael in CA
June 8, 2008, 12:17am (report abuse)As someone who suffers from an inflammatory bowel disease, I strongly support this bill and the Senate's equivalent. Much important research has been accomplished in the past decade because the NIH and organizations that co-fund research have focused their attention and money on them, research that has brought relief to those who suffer from the most severe instances of diseases like Ulcerative Colitis and Crohn's Disease. Over 1.4 million Americans live with these unpredictable, life-altering illnesses, many with severe pain and limits on their daily activities. More research is needed to hone in on the genetic and environmental causes, effective long-lasting treatments, and ultimately a cure that can allow patients with IBDs to live normal lives again.