http://www.washingtonwatch.com/bills info@washingtonwatch.com http://www.pjdoland.com/chai/?v=0.1 http://www.washingtonwatch.com/bills/show/110_SN_2042.html#48006 Please help funding for sma, i lost my Son Seán at 9 months old he was the light of my life, i was told 9 weeks befo he passed away that he had sma and that there was nothing anybody could do to prevent it. Parents are supposed to be able to protect there children, but parents cant protect them form sma. He sits on my shoulder and looks after me everyday, ill never see him as a man. please dont let more mothers and fathers feel the pain us fellow parents have felt.... 48006@http://www.washingtonwatch.com Mon, 05 Jan 2009 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#47774 I used to think that disabled people were normal people with disabilities. Now I know better. These are amazing people. I don't know if being born so disabled allows them to grow in a way that we "normal" people can, but these people are truly shining lights who are role models in spirit, bravery, and compassion. They give so much to society... they touch every person they meet and leave that person for the better... it's time to give back to them. I am the auntie of one of these special kids, and if there is money for wall street, the auto unions, the billionaire auto CEOs, but none to save the lives of these kids, well, that's a society I am not sure I want to be a part of.... 47774@http://www.washingtonwatch.com Fri, 26 Dec 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#47492 I have SMA type III and am still barely hanging on to my ability to walk at 40. We are so close. Please pass this bill now, America.... 47492@http://www.washingtonwatch.com Tue, 16 Dec 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#47129 This Bill is really needed. There are so many families devestated by this terrible disease. What a tragedy!... 47129@http://www.washingtonwatch.com Thu, 04 Dec 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#47061 SMA is the #1 genetic killer of children under 2. This bill could help us find a cure. Please support this bill to help the innocent children suffering from this disease.... 47061@http://www.washingtonwatch.com Mon, 01 Dec 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#47021 PASS the bill NOW !!!! Stop spending money on destroying lives, and start spending it to save them instead ! We only get one life, let this bill try to prolong more lives for the futures sake !... 47021@http://www.washingtonwatch.com Sun, 30 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#47026 I am the Nanny of Lilly Robyn. If we can help by joining this list so be it What I don't understand is why with all these Australians on the list Australia doesn't have its own clinical trials ready to go. Let's get an Australian list. Email Matt and Stella or me through face book. We are ALL praying for a cure - but we need more than prayers!!!... 47026@http://www.washingtonwatch.com Sun, 30 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46983 Any disease is a pain. It is physical and emotional suffering that a sick person and his/her family are going through. But even worst case patients have HOPE that one day they will be disease free. Well, we don’t have this HOPE, yet. We watch our little brave fighters getting weaker day after day, unable to explain why there is no medicine to help him/her sit, walk, and breathe independently. Please save our children Please give us HOPE... 46983@http://www.washingtonwatch.com Sat, 29 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46973 Cannot imagine the heartache ... watching your child slowly deteriorate. Pass this bill . who in the world could vote AGAINST it?... 46973@http://www.washingtonwatch.com Fri, 28 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46926 This is just a horrible, horrible thing that any parent and child should have to go through. Please help pass the bill... I can't even begin to comprehend that nothing is yet being done to help cure all the children affected by this! Our love & prayers go out to Stella, Matt & Lilly Robyn and to all going through this xox... 46926@http://www.washingtonwatch.com Wed, 26 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46885 pass the bill and save lives... 46885@http://www.washingtonwatch.com Tue, 25 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46897 Please pass this bill!!! It seems an insanity that this is even in question! Pass the bill for beautiful Ava and all the other babies and families who have suffered and who are suffering x... 46897@http://www.washingtonwatch.com Tue, 25 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46900 Please pass this bill, children are such a special gift. You help one child its a success.... 46900@http://www.washingtonwatch.com Tue, 25 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46913 I can't believe that the bill is even in question,I am the aunt of Stella Matt and Lilly Robyn,every child should be given every opportunity to live their lives to the fullest,their families the opportunity to love and nurture them forever.Please help all the families affected to fullfill their dreams..... Imagine...............I dont think you can... 46913@http://www.washingtonwatch.com Tue, 25 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46877 Pass the bill...anything that may give hope to these suffering families should be passed.... 46877@http://www.washingtonwatch.com Mon, 24 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46830 no child should have to suffer in any way pass the bill and help them live!... 46830@http://www.washingtonwatch.com Sun, 23 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46831 Please pass the bill...children should never have to go through this nor should their families.... 46831@http://www.washingtonwatch.com Sun, 23 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46841 pass the bill..you have the power to save lives.. so pass the bill... 46841@http://www.washingtonwatch.com Sun, 23 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46801 Being A mother and Grand mother I would vote 4 anything 2 save these beautiful little angels we r blessed with xxx... 46801@http://www.washingtonwatch.com Sat, 22 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46826 Look any child, mother, father, family member or friend of a child suffering from SMA in the eyes and tell them why this Bill shouldnt be passed. There is no need for debate, pass the bill now. the time for talk is over these children need action!... 46826@http://www.washingtonwatch.com Sat, 22 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46729 Please pass this bill! no family should have to deal with this!!! Something needs to be done.... 46729@http://www.washingtonwatch.com Fri, 21 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46730 Please pass this bill, please don't let families go through what the above families have and are going through. This should not even have to be decided is should be a given right of these children to have any and everything which can be possibly done. I agree with a poster above who says is will be murder NOT to pass the bill.... 46730@http://www.washingtonwatch.com Fri, 21 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46731 I just lost my 7 month old grand daughter sept 08. Please pass this bill. Stop the loss of life of these precious babies!... 46731@http://www.washingtonwatch.com Fri, 21 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46734 SMA is a terrible, terrible disease. I now know two beautiful babies that have died as a result. My thoughts and prayers are still with Russel and Lucinda who lost beautiful Ava early this year. Please pass this bill.... 46734@http://www.washingtonwatch.com Fri, 21 Nov 2008 00:00:00 EST http://www.washingtonwatch.com/bills/show/110_SN_2042.html#46740 If you do not pass this bill, you are failing hopes and dreams of families world-wide. Take notice and have a heart. x.... 46740@http://www.washingtonwatch.com Fri, 21 Nov 2008 00:00:00 EST