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P.L. 110-374, The Prenatally and Postnatally Diagnosed Conditions Awareness Act
- This item is from the 110th Congress (2007-2008) and is no longer current. Comments, voting, and wiki editing have been disabled, and the cost/savings estimate has been frozen.
Comparing revision saved on March 14, 2008, 04:21:44 (webmaster), with revision saved on April 22, 2008, 20:01:58 (webmaster):
S. 1810 would amend the Public Health Service Act to increase the provision of scientifically sound information and support services to patients receiving a positive test diagnosis for Down syndrome or other prenatally and postnatally diagnosed conditions.
== Detailed Summary ==
<summary>
Prenatally and Postnatally Diagnosed Conditions Awareness Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through either the Director of the National Institutes of Health (NIH), the Director of the Centers for Disease Control and Prevention (CDC), or the Administrator of the Health Resources and Services Administration (HRSA), to authorize and oversee certain activities relating to Down syndrome or other prenatally or postnatally diagnosed conditions, including the awarding of grants, contracts or cooperative agreements to: (1) collect, synthesize, and disseminate current scientific information; and (2) coordinate the provision of, and access to, supportive services for patients affected.
Requires the Secretary, acting through the Director of CDC, to provide assistance to state and local heath departments to integrate the results of prenatal or postnatal testing into state-based vital statistics and birth defects surveillance programs. Prohibits such results from being reported unless the patient consents.
Requires a health care provider to provide certain information to a patient who receives a positive test result from a prenatal or postnatal test for such a condition, including: (1) up-to-date scientific information concerning the life expectancy, clinical course, and intellectual and functional development and treatment options for a fetus diagnosed with, or a child born with, such conditions; and (2) referrals to supportive service providers.
Requires the Government Accountability Office (GAO) to submit a report to Congress concerning the effectiveness of current health care and family support programs serving as resources for the families of children with disabilities.
</summary>
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== Status of the Legislation ==
<status>
Latest Major Action: 3/13/2008: Senate committee/subcommittee actions. Status: Committee4/21/2008: Placed on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.Senate Legislative Calendar under General Orders. Calendar No. 701.
</status>
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== Points in Favor ==
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== Points Against ==
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There was no up-or-down vote in the House.
There was no up-or-down vote in the Senate.
Visitor Comments 
Dave and Sabrina
June 22, 2008, 9:49am (report abuse)The testing and support networks are a key in living through this experience. We were blessed with a baby that had Trisomy 18 and got to enjoy her for three months. The second part of our blessing happen because of the military and the support we got from a developmental pediatric at an Army hospital in Washington State. On the down side when our daughter was born off the base the doctor that delivered her treated her like a peace of meat with no compassion during a very stressful situation. This law is a very good thing
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