S. 1382 would amend the Public Health Service Act to provide the establishment of an Amyotrophic Lateral Sclerosis Registry.

== Detailed Summary ==

<summary>
(Log inALS Registry Act - Amends the Public Health Service Act to editrequire the wikiSecretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) develop a system to collect data on amyotrophic lateral sclerosis (ALS) and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, or progress to ALS; and (2) establish a national registry for the firstcollection and storage of such data.

Requires the Secretary, acting through the Director, to establish the Advisory Committee on the National ALS Registry to review information and make recommendations to the Secretary concerning: (1) the development and maintenance of the registry; (2) the type of information to be included; (3) the manner in which data is to be collected; (4) the use and availability of such data; and (5) the collection of information about diseases and disorders that primarily affect motor neurons that are considered essential to furthering the study and cure of ALS.

Allows the Secretary, acting through the Director, to award grants to, and enter into contracts and cooperative agreements with, public or private nonprofit entities for the collection, analysis, and reporting of data on ALS and other motor neuron disorders.

Requires the Secretary, acting through the Director, to: (1) identify, build upon, expand, and coordinate among existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and (2) provide for research access to ALS data as recommended by the Advisory Committee in a detailed summarymanner that protects personal privacy.

Requires the Secretary to ensure that epidemiological and other types of information is made available to the bill!)National Institutes of Health (NIH) and the Department of Veterans Affairs.
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== Status of the Legislation ==

<status>
Latest Major Action: 5/14/2007: Referred to Senate committee. Status: Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
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== Points in Favor ==

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== Points Against ==

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