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P.L. 110-233, The Genetic Information Nondiscrimination Act of 2007
- This item is from the 110th Congress (2007-2008) and is no longer current. Comments, voting, and wiki editing have been disabled, and the cost/savings estimate has been frozen.
Comparing original version (created by webmaster) with revision saved on July 18, 2007, 17:52:26 (webmaster):
H.R. 493 would prohibit discrimination on the basis of genetic information with respect to health insurance and employment.
== Detailed Summary ==
<summary>
Genetic Information Nondiscrimination Act of 2007 - <b>Title I: Genetic Nondiscrimination in Health Insurance</b> - (Sec. 101) Amends the Employee Retirement Income Security Act of 1974 (ERISA) and(ERISA), the Public Health Service Act (PHSA), and the Internal Revenue Code to expand the prohibition against discrimination byprohibit a group health plans and health insurance issuers in theplan from adjusting premium or contribution amounts for a group and individual markets on the basis of genetic information or services to prohibit: (1) enrollment and premium discrimination based on information about a request for or receipt of genetic services; and (2) requiring genetic testing. Sets forth penalties for violations. information.
Amends title XVIII (Medicare)Prohibits a group health plan from requesting or requiring an individual or family member of an individual from undergoing a genetic test. Provides that such prohibition does not: (1) limit the Social Security Act to prohibit issuersauthority of Medicare supplemental policiesa health care professional to request an individual to undergo a genetic test; or (2) preclude a group health plan from discriminating onobtaining or using the basisresults of a genetic information. test in making a determination regarding payment. Requires the plan to request only the minimum amount of information necessary to accomplish the intended purpose.
Extends medical privacy and confidentiality rulesAllows a group health plan to request, but not require, a participant or beneficiary to undergo a genetic test for research purposes if certain requirements are met, including: (1) the disclosure ofplan clearly indicates that compliance with voluntary and that noncompliance will have no effect on enrollment status or premium or contribution amounts; (2) no genetic information. information collected or acquired is used for underwriting purposes; and (3) the plan notifies the Secretary of Health and Human Services that it is conducting activities pursuant to this exception and includes a description of the activities.
Makes it an unlawful employment practiceProhibits a group health plan from requesting, requiring, or purchasing genetic information: (1) for an employer, employment agency, labor organization,underwriting purposes; or training program(2) with respect to discriminate against anany individual or depriveprior to such individual of employment opportunities because of genetic information. Prohibits the collection and disclosure of genetic information,individual's enrollment in connection with certain exceptions. such enrollment (provides that incidentally obtains such information is not a violation).
EstablishesApplies such prohibitions to all group health plans, including small group health plans.
Provides that any reference to genetic information concerning an individual or family member includes genetic information of: (1) a fetus carried by a pregnant woman; and (2) an embryo legally held by an individual or family member utilizing an assisted reproductive technology.
Authorizes the appropriate secretary to impose a monetary penalty or tax against any sponsor of a group health plan for any failure to meet requirements of this Act. Limits such penalties if they are the result of reasonable cause and not willful neglect.
(Sec. 102) Amends the PHSA to prohibit: (1) a health insurance issuer offering health insurance coverage in the individual market from establishing eligibility rules for enrollment based on genetic information; (2) discrimination on the basis of genetic information for health insurance offered in the individual market in the same manner as such discrimination is prohibited for group coverage; and (3) the imposition by a health insurance issuer offering health insurance coverage in the individual market of a preexisting condition exclusion on the basis of genetic information.
Applies such requirements to nonfederal government plans.
(Sec. 104) Amends title XVIII (Medicare) of the Social Security Act (SSA) to prohibit an issuer of a Medicare supplemental policy, on the basis of genetic information, from: (1) denying or conditioning the issuance or effectiveness of the policy, including the imposition of any exclusion of benefits based on a preexisting condition; or (2) discriminating in the pricing of the policy, including the adjustment of premium rates.
Prohibits an issuer of a Medicare supplemental policy from: (1) requesting or requiring an individual or a family member to undergo a genetic test; or (2) requesting, requiring, or purchasing genetic information for underwriting purposes or for any individual prior to enrollment.
(Sec. 105) Amends SSA title XI to require the Secretary of Health and Human Services to revise Health Insurance Portability and Accountability Act of 1996 (HIPAA) privacy regulations to: (1) treat genetic information as health information; and (2) prohibit the use or disclosure by a group health plan, health insurance coverage, or Medicare supplemental policy of genetic information about an individual for underwriting purposes.
(Sec. 106) Requires the Secretary of Health and Human Services, the Secretary of Labor, and the Secretary of the Treasury to ensure that regulations under this title are administered as to have the same effect and a coordinated enforcement strategy.
<b>Title II: Prohibiting Employment Discrimination on the Basis of Genetic Information</b> - (Sec. 202) Prohibits, as an unlawful employment practice, an employer, employment agency, labor organization, or joint labor-management committee from discriminating against an employee, individual, or member because of genetic information, including by: (1) for an employer, failing to hire or discharging an employee or otherwise discriminating against an employee with respect to the compensation, terms, conditions, or privileges of employment; (2) for an employment agency, failing or refusing to refer an individual for employment; (3) for a labor organization, excluding or expelling a member from the organization; (4) for an employment agency, labor organization, or joint labor-management committee, causing or attempting to cause an employer to discriminate against a member in violation of this Act; or (5) for an employer, labor organization, or joint labor-management committee, discriminating against an individual in admission to, or employment in, any program established to provide apprenticeships or other training or retraining.
Prohibits, as an unlawful employment practice, an employer, employment agency, labor organization, or joint labor-management committee from limiting, segregating, or classifying employees, individuals, or members because of genetic information in any way that would deprive or tend to deprive such individuals of employment opportunities or otherwise adversely affect their status as an employee.
Prohibits, as an unlawful employment practice, an employer, employment agency, labor organization, or joint labor-management committee from requesting, requiring, or purchasing an employee's genetic information, except for certain purposes, which include where: (1) such information is requested or required to comply with certification requirements of family and medical leave laws; (2) the information involved is to be used for genetic monitoring of the biological effects of toxic substances in the workplace; and (3) the employer conducts DNA analysis for law enforcement purposes as a forensic laboratory.
(Sec. 206) Requires an employer, employment agency, labor organization, or joint labor-management committee that possesses any genetic information about an employee or member to maintain such information in separate files and treat such information as a confidential medical record.
Prohibits an employer, employment agency, labor organization, or joint labor-management committee from disclosing such genetic information, except: (1) to the employee or member upon request; (2) to an occupational or other health researcher; (3) in response to a court order; (4) to a government official investigating compliance with this Act if the information is relevant to the investigation; or (5) in connection with the employee's compliance with the certification provisions of the Family and Medical Leave Act of 1993 or such requirements under State family and medical leave laws.
(Sec. 207) Sets forth provisions regarding enforcement of this Act.
(Sec. 208) Provides that disparate impact on the basis of genetic information does not establish a cause of action under this Act.
Establishes the Genetic Nondiscrimination Study Commission six years after enactment of this Act to review the developing science of genetics and adviseto make recommendations to Congress on the advisability of providing forregarding whether to provide a disparate impact cause of action under this Act. Authorizes appropriations to the Equal Employment Opportunity Commission (EEOC) to carry out this section.
(Sec. 212) Authorizes appropriations.
<b>Title III: Miscellaneous Provision</b> - (Sec. 301) Amends the Higher Education Act of 1965 to lower the percentage of a borrower's student loan payment made under the Federal Family Education Loan program subsequent to default that a guaranty agency may retain for deposit in its operating fund if the Secretary of Education has already reimbursed it for such default.
(Sec. 302) Provides that if any provision of this Act, an amendment made by this Act, or the application of such provision or amendment to any person or circumstance is held to be unconstitutional, the remainder of this Act shall not be affected.
</summary>
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== Status of the Legislation ==
<status>
Latest Major Action: 4/30/2007: Read the second time. Placed on Senate Legislative Calendar under General Orders. Calendar No. 125.
</status>
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== Points in Favor ==
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== Points Against ==
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Visitor Comments
Elizabeth
December 15, 2007, 6:32am (report abuse)I certainly hope this bill passes. My family carries a gene for a potentially fatal disease. We have avoided genetic testing, which also means that we have avoided possibly early treatment. This does not save insurance companies money in the long run - as they have to pay for more expensive treatments once the disease has manifested.
PLEASE PASS THIS BILL!!