H.R. 1553 would amend the Public Health Service Act to advance medical research and treatments into pediatric cancers, ensure patients and families have access to the current treatments and information regarding pediatric cancers, establish a population-based national childhood cancer database, and promote public awareness of pediatric cancers.

== Detailed Summary ==

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ConquerCaroline Pryce Walker Conquer Childhood Cancer Act of 20072008 - (Sec. 4) Amends the Public Health Service Act to require the Director of the National InstitutesSecretary of Health (NIH), actingand Human Services to continue to enhance, expand, and intensify pediatric cancer research and other activities related to pediatric cancer, including therapeutically applicable research to generate effective treatments, pediatric preclinical testing, and pediatric clinical trials through the National Cancer Institute,Institute-supported pediatric cancer clinical trials groups and their member institutions. Encourages the Secretary to establish special programs of research excellence intake into consideration the areaapplication of pediatric cancers. such research and other activities for minority, health disparity, and medically underserved communities.

RequiresAuthorizes the Secretary of Healthto award grants to childhood cancer professional and Human Servicesdirect service organizations for the expansion and widespread implementation of: (1) activities that provide information on treatment protocols to develop a grant mechanismensure early access to the best available therapies and clinical trials for pediatric cancers; (2) activities that provide available information on the establishmentlate effects of Research Fellowships in Pediatric Cancerpediatric cancer treatment to ensure access to necessary long-term medical and psychological care; and (3) direct resource services such as educational outreach for parents, information on school reentry and postsecondary education, and resource directories or referral services for financial assistance, psychological counseling, and other support adequate numbersservices. Encourages the Secretary to take into consideration the extent to which an entity would use such grant for purposes of pediatric focused clinicalmaking activities and translational investigators. services available to minority, health disparity, and medically underserved communities. Requires the Secretary to develop and implement metrics-based performance measures to assess the effectiveness of activities funded under such grants. Requires any information made available pursuant to a grant to be: (1) culturally and linguistically appropriate as needed by patients and families affected by childhood cancer; and (2) approved by the Secretary.

Requires the Director to award a grantAuthorizes appropriations for the operation of a population-based national childhood cancer database, the Childhood Cancer Research Network.FY2009-FY2013.

Requires the SecretarySecretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to award grantsa grant to recognized childhood cancer professionalenhance and advocacy organizationsexpand infrastructure to raise public awarenesstrack the epidemiology of currently available information, treatment, and research with intentpediatric cancer into a comprehensive nationwide registry of actual occurrences of pediatric cancer. Requires such registry to ensure accessbe updated to best available therapies for pediatric cancers.include an actual occurrence within weeks of the date of such occurrence. Subjects such registry to federal laws regarding records maintained on individuals, health information privacy regulations, informed consent regulations, and any other federal laws relating to the privacy of patient information.
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== Status of the Legislation ==

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Latest Major Action: 7/25/2008: Presented to7/29/2008: Signed by President.
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== Points in Favor ==

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== Points Against ==

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