http://www.washingtonwatch.com/bills info@washingtonwatch.com http://www.pjdoland.com/chai/?v=0.1 http://www.washingtonwatch.com/bills/show/111_HR_1179.html#71892 HELP!!!!... 71892@http://www.washingtonwatch.com Wed, 30 Sep 2009 16:54:50 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#69930 I am 38 years old, just diagnosed with Lymes and very angry that a correct blood test 20 years ago could of changed my life for the better. At 17, I was very athletic but than I became very sick -diagnosed as epstein barr. After my (epstein Barr???) I have been to numerous specialists all to find out that nothing is wrong with me. And was told this was all in head.I cried. I suffered with panic attacks, joint pain, brain fogs, numbness, depression, etc and was not getting any better just worse as I grew older. At the age of 30 - I was diagnosed with Fibromyalgia. No meds ever helped and I still was not getting any better. After the birth of my son - My symtoms were magnified!!! I felt the worst I ever did and everyday I worried - how am I going to take care of this child. God carried me through it!! A Friend advised me to see a lymes specialist-tested positive have lymes!! most likely for the last 20 years. At least now I can be treated and have hope that I will get better!!... 69930@http://www.washingtonwatch.com Fri, 25 Sep 2009 21:39:40 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#67190 I have this disease and now believe I have had it since childhood. A surgery in recent years caused it to come out of dormancy. I have known cancer sufferers who suffered less than what I have in the 2 years since my surgery. The rate at which Lymes Disease is spreading is simply too significant to ignore any longer! Please help the human race by taking this disease seriously WASHINGTON!... 67190@http://www.washingtonwatch.com Thu, 17 Sep 2009 16:14:14 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#65367 At least in the UK chronic fatigue is recognised as past possible Lyme infection, especially where the characteristic rash is present. We can get metronidazole (flagyl and clindomycin). Read Dr Scott Taylor. I was a horse rider who suddenly became ill 12 years ago with a transient rash and was never ever to return to full health. I suffer relapses of chronic fatigue and realise that the part of Kent (UK) I lived in was rife with the tick borne disease (Borellia, which is like a syphillitic spirochete). I don't understand how it can be so expensive to treat. It is only a sulfonamide........ 65367@http://www.washingtonwatch.com Fri, 04 Sep 2009 11:46:44 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#65290 After watching Congress hearing on this disease in 1994, I am appalled in the United States Government. Here we sit over 15 years ago with this disease. No change! The disease count is rising. Its time to be a catalyst for change in the face of this disease. Do the right thing and pass this bill.... 65290@http://www.washingtonwatch.com Thu, 03 Sep 2009 09:44:47 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#64159 I am in Central Virginia, where Lyme is growing, yet the doctors don't realize it. They are following protocols and guidelines that are not back by the hard evidence and research. Both me and my daughter have had Lyme for 3 months. My Lyme killed my unborn (4th child) baby this past month because my doctor wasn't aware of it's prevalence or risks or even symptoms!!! We are now fighting to be treated effectively as we were lucky enough to catch the disease early. However, none of our doctors can or will treat us with the meds we need! The evidence is out there! We need to be treated with what works. We need to be on antibiotics for more than 3 weeks! We need to be taken seriously. Doctors need to make clinical diagnoses based on symptoms and evidence, not just the highly unreliable blood tests! Say yes to H.R. 1179!!!!... 64159@http://www.washingtonwatch.com Mon, 10 Aug 2009 16:02:32 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#63488 So please every one call the State House and tell them to past H.R. 1179. So others don't get undiagnosed or misdiagnosed and have to suffer like I do. By the way I am only 55 and have no idea how I will live with no money or a way to make any for the rest of my life because of Lyme Disease. I am so happy with the medical profession I could just laugh. HA HA. What a joke. I thought it was a docotrs job to find out what is wrong with a patient if they did not know. Not for the patient to have to find out them selves. One last thing. I like to know why doctors still get paid for when they don't know what is wrong with you, and run up your bill by runing all the test in the world and in the end look you in the eye and say "I don't know whats wrong with you". I my line of work I didn't get paid if I didn't know something. So we should all get together and refuse to pay our medical bills if the doctors don't know what wrong. WHO"S WITH ME ON THIS? elliot274@hotmail.com... 63488@http://www.washingtonwatch.com Wed, 29 Jul 2009 18:28:34 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#63487 I did not have health insurance when I first got sick, then I tried for years to get health insurance and kept getting turned down for preexisting condition. So I had it spend my life's savings and all of my of retirement to the sum of $130,000.00. Now I am unable to work and completely out of money with medical bills piling up. The only hope I have is that the law's change for Lyme disease and the come up with a better treatment. But the way government works it doesn't look like it will be any time soon. So I have to suffer day after day in excruciating pain that is so intense that beads of sweat roll off of my forehead, and make me feel like vomiting. which makes it so my stomach is so upset that I can't hold down food. This disease even with treatment is still slowly killing me. The insanity that is associated with the pain is bound it put anyone in the hut house. Please look for my next post... 63487@http://www.washingtonwatch.com Wed, 29 Jul 2009 18:22:04 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#63486 I hope this legislation passes. So for those of you who have the obligation to vote on H.R. 1179 PLEASE vote YES I am a suffering chronic Lyme Disease patient. Who was misdiagnosed for 4 year from when I had the Bell's Paisley. By the time I was properly diagnosed It was completely bed ridden, and could not even do daily functions, such as bath or eat. I had to go to Wilton Ct. to find a doctor who knew enough to run the proper test on me. If I had gone another 4 months I would have died from this terrible disease. It is very important that doctors are ordered to learn about Lyme, and know how to treat it. If I was diagnosed early I would not be in the state I am in now. Which is unable to work, or take care of myself, I can't even think about going on a vacation, because it is completely impossible for me to even leave my house. This Disease has distorted my life and alienated my children, and friends from me because I am so sick all the time. Please look for my next post... 63486@http://www.washingtonwatch.com Wed, 29 Jul 2009 18:20:33 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#62384 I was dianosed with lyme and then RMS Fever with poor lagcorp blood test. Treated for 4wks then suposedly cured. From that time to 4months later I became very ill untill I got to a Lyme Dr..I'm getting better slowly but surely. I truely believe the later Dr. has saved my life.The IDSA 4wk protocol left me for dead. Thank God for the Dr.'s who see cronic lyme and treat it.Please pass this bill and help continue to save my life as well as thousands of others with Lyme.... 62384@http://www.washingtonwatch.com Fri, 10 Jul 2009 20:05:51 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#55386 For over 8 years I took my daughter to local pediatricians for round red rashes (that only went away while on antibiotics, joint pain and fatique. I would ask about Lyme - and the reply was "we don't have Lyme in Tn". WRONG! If she had been treated correctly then, she would not have spent the lastll 8 years with increasing symptoms and the last 18 months at home, missing school, and taking over 100 pills a day. She is recovering - but the emotional, physical and financial costs are staggering. We had to go to the North East to finally get diagnosed and treated. The medical community is really letting us down - due to their ignorance and lack of intelligent curiosity when it comes to hard-to-diagnose cases. Education is the key to ending this "silent epidemic". Please get the bill passed so that other families won't have to go through the heartbreak and diffculties we are going through.... 55386@http://www.washingtonwatch.com Fri, 03 Apr 2009 01:12:57 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#55197 Both my wife and daughter have this disease. The effects have destroyed their quality of life and caused pain and suffering that has caused them to lose hope in it being cured. Please pass this Bil and give them the hope that they need to continue the fight against Lyme.... 55197@http://www.washingtonwatch.com Wed, 01 Apr 2009 14:52:57 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#54418 Please say yes to this bill. This disease is so devastating, and many have suffered.... 54418@http://www.washingtonwatch.com Wed, 25 Mar 2009 19:07:52 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#54392 This disease needs to be researched and acknowledged as a global health concern. Many of our country\'s leading doctors are ignorant of this disease. Most people with this disease are unaware due to being misdiagnosed with other diseases. This disease is devastating to all who obtain it.... 54392@http://www.washingtonwatch.com Wed, 25 Mar 2009 11:44:07 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#54386 please give attention to this bill! lyme disease needs attention and awareness to save lives! vote yes to this bill!!... 54386@http://www.washingtonwatch.com Wed, 25 Mar 2009 10:29:13 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#53553 Seeing the mental and physical anguish that this disease can cause is enough to persuade anyone to vote in favor of this bill. PASS IT NOW!... 53553@http://www.washingtonwatch.com Sat, 14 Mar 2009 12:21:38 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#53539 Please vote yes on this Bill.This is so important to so many people.Lymes is a very bad thing and it is making alot of people suffer.Please help to stop Lymes before it can damage more peoples lives.May God Bless you for your efforts.... 53539@http://www.washingtonwatch.com Fri, 13 Mar 2009 23:53:02 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#53534 Please vote yes for the Lyme disease to help many who are suffering with it.... 53534@http://www.washingtonwatch.com Fri, 13 Mar 2009 22:25:15 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#53526 DEAR CONGRESS, PLEASE DO WHATEVER IT TAKES TO GET THIS BILL MOVING INTO ACTIONS. SO MANY PEOPLE ARE BEING MISDIAGNOSED.... 53526@http://www.washingtonwatch.com Fri, 13 Mar 2009 19:32:17 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#53521 I have a daughter with Lyme . We desperately need to see this bill go though. Education is the key ! our daughter has been sick since she was 9 years old and will soon have her 13th birthday. If local Dr.'s had been educated as well as us as parents we could have prevented her from missing such a large portion of her life ! We must change CDC guidelines, do research and educate the medical community on the DANGERS of LYME. How many children or adults for that matter have to suffer before we stand together and change things. For my daughter and others like her lets get this bill passed and try to see some change !!!... 53521@http://www.washingtonwatch.com Fri, 13 Mar 2009 17:45:47 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#53520 Please support this bill as the funding for increased research and care are vital to continued understanding of tick born disease. Our family of five became ill with Lyme, Bartonella, and Rocky Mountain Fever after exposure to deer ticks while camping. Two members are now on long term IV antibiotics and the others are on orals. This devastating disease continues to spread across America. Will you be next? Vote Yes.... 53520@http://www.washingtonwatch.com Fri, 13 Mar 2009 17:30:26 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#53445 Please on behalf of our 2 children and many others suffering with this debilitating disease. Please support this bill so that more research and better testing can allow for quicker diagnosis and treatments.... 53445@http://www.washingtonwatch.com Thu, 12 Mar 2009 08:06:03 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#53416 HR 1179, The Lyme & Tick-Borne Diseases Prevention, Education & Research Act of 2009 Please research the importance and value of life. More importantly, look at the reason and promises insurance companies are making. I think Lyme disease should be considered as the global health problem as it is, making lots and lots of people losing their health, hope, lives and families. There really is need for lots of serious research of the disease, testing and treatments, which also should be brought to light and attention of people everywhere. It is difficult and tragic enough to be ill, without being misdiagnosed or ill treated. I am signing this petition in hope of making a difference! Sincerely, Stacy Hultman... 53416@http://www.washingtonwatch.com Wed, 11 Mar 2009 14:14:58 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#53408 PLEASE HELP!!!!!... 53408@http://www.washingtonwatch.com Wed, 11 Mar 2009 11:30:37 EDT http://www.washingtonwatch.com/bills/show/111_HR_1179.html#53241 There are no words to express how important it is to have chronic Lyme disease stopped. The money, suffering and having to deal with doctors who maintain there is no such disease is almost unbearable. Help is needed NOW!... 53241@http://www.washingtonwatch.com Mon, 09 Mar 2009 00:36:04 EDT