http://www.washingtonwatch.com/bills info@washingtonwatch.com http://www.pjdoland.com/chai/?v=0.1 http://www.washingtonwatch.com/bills/show/110_HR_3334.html#47059 SMA is the #1 genetic killer of children under 2. This bill could help us find a cure. Please support this bill to help the innocent children suffering from this disease.... 47059@http://www.washingtonwatch.com Mon, 01 Dec 2008 23:43:07 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46733 Three months ago my oldest daughter was diagnosed with SMA after a year of tests. A month later her younger sister was diagnosed as well. Everyday I struggle with the fact that their lives could be cut short by no doing of their own. We need to pass this bill yesterday, ten years ago, twenty. A cure can't come soon enough. All they need is more funds. This could be the start of making this disease more mainstream. More children are living with this around the world than we know. Pass the bill and find a cure.... 46733@http://www.washingtonwatch.com Fri, 21 Nov 2008 00:47:05 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46482 Please vote for H.R. 3334. This is a devasting disease for the child and his/her family. Care is 24/7 and the helplessness a parent must feel to know that there is no cure. I have a friend whose granddaughter has SMA Type 1. SMA patients need RESEARCH, RESEARCH, and more RESEARCH.... 46482@http://www.washingtonwatch.com Tue, 18 Nov 2008 23:16:18 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46406 A vote for the SMA Acceleration Act could have thousands of lives. mother to Aiden, Sma type 1 21 months.... 46406@http://www.washingtonwatch.com Tue, 18 Nov 2008 10:12:29 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46379 I am a mother of a precious child and Heaven and if it wasn't for Spinal Muscular Atrophy I would still be able to hold my baby boy in my arms and watch him grow up to be a handsome young man. I will never have the chance to hold him in my arms again, feed him, watch him graduate, see him get married and have kids because SMA took that all away from our family. My son is now SMA free but no child should ever have to endure the type of pain that a child with SMA has to go through and no parent should ever have to watch their child suffer! I should be able to wake up next to my sweet child and see his beautiful smile. Please support the bill. It will not only make many dreams come true but will SAVE LIVES!!!! In Memory of my Smiling Angel Francisco, Jr.... 46379@http://www.washingtonwatch.com Mon, 17 Nov 2008 22:03:41 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46369 Vote for life; vote for H.R. 3334... 46369@http://www.washingtonwatch.com Mon, 17 Nov 2008 18:47:35 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46357 We lost my sweet little nephew, Truman, when he was only 4 months old. He had SMA type 1. Before Truman was diagnosed, I had never heard of SMA, and when I learned more about it, it shocked me that it was so unknown to the general public. SMA is a terrible disease - watching this sweet, vibrant child trapped inside a body that is degenerating every day is the most devastating thing I've been through in my life - and I can't even imagine what my sister and brother-in-law experienced losing their baby. Our family will never be the same, and there are thousands out there just like us. Researchers are so close to a cure, there is no reason children should continue to suffer. Please vote to pass this bill.... 46357@http://www.washingtonwatch.com Mon, 17 Nov 2008 17:29:19 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46346 Please, take a moment to learn about SMA.Once you understand this awful disease you will feel compelled to support the legislation. It would unthinkable to know, and not act.... 46346@http://www.washingtonwatch.com Mon, 17 Nov 2008 15:36:58 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46213 My son Zeke is 8 years old and has SMA type 2. According to the experts, a cure for this disease is within reach. It is time for YOU to help us. If we had a fraction of the support you just gave in the bailout for Wall Street, then maybe my son's dream of walking could be fulfilled.... 46213@http://www.washingtonwatch.com Fri, 14 Nov 2008 19:13:58 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46198 Gwendolyn and all the other kids who are helpless to make changes need our help. Please pass this bill and give these amazing fighters the fighting chance they deserve.... 46198@http://www.washingtonwatch.com Fri, 14 Nov 2008 12:07:46 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46189 Please support this bill! It is time to make a difference and help these families with SMA. These children deserve a cure. Save a life!!... 46189@http://www.washingtonwatch.com Fri, 14 Nov 2008 08:28:39 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46183 I am the aunt of twin boys with SMA. It is time to help them as well as other children affected by this condition. We cannot let another day go by and do nothing. NOW is the time to help these innocent children and their families.... 46183@http://www.washingtonwatch.com Fri, 14 Nov 2008 00:49:26 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46157 Please, please, please pass this Bill. The families of these children are desperate for help. My daughter has Type 2 SMA, she is smart and loves life but is very, very weak. Passing this bill could help us find a cure for SMA and save many children's lives. Thank you.... 46157@http://www.washingtonwatch.com Thu, 13 Nov 2008 17:44:22 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46072 I wish the human beings to discharge the obligation to rescue someone in need. Please take action to vote for the Bill.... 46072@http://www.washingtonwatch.com Wed, 12 Nov 2008 05:40:40 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46071 Absolutely agreed!... 46071@http://www.washingtonwatch.com Wed, 12 Nov 2008 02:14:59 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46056 It is unthinkable that one wouldn't vote in favour of an Act that can promote finding a cure not only for these innocent children wh have SMA, but for so many other neurological diseases. Please be human, do the right thing to accelerate finding the cure. Scientists are getting near to the solution.... 46056@http://www.washingtonwatch.com Tue, 11 Nov 2008 16:30:46 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46053 Please pass SMA Treatment Acceleration Act and help to find a cure for all SMA children. This will also lead to find treatment for other neuromuscular diseases. If we can afford to give AIG and other failing banks billions of dollar, we should be able to fund money to find treatments to help our own children - They are our future.... 46053@http://www.washingtonwatch.com Tue, 11 Nov 2008 13:40:48 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46045 My great niece Gwendolyn is one year old and living with SMA '1' She is doing OK but it is a constant 24/7 battle to keep her going. Please pass the HR 3334 bill.  She is so precious and deserves nothing but the  best.  If love could cure this disease she would be cured already, but......please pass this bill!  ... 46045@http://www.washingtonwatch.com Tue, 11 Nov 2008 11:03:12 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46038 I really don't understand how someone cannot vote for this bill. Come on people let's get this passed.... 46038@http://www.washingtonwatch.com Tue, 11 Nov 2008 08:49:47 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46032 My beautiful nephew Owen Shuler lost his brave fight to SMA at only 5 months old. I will never forget the day I sat in the doctors office and was told that there is no treatment and a short lifespan. I still get nauseous thinking about. The fact that my little sister and brother in law had to bury their baby is so unacceptable and unnatural. Crisis is a word that has been used for the ecomony, but the real crisis is that babies are dying and families are forever broken. It is not to say that this bill SHOULD be past, it MUST be past. To learn more about SMA and the families affected please visit; www.fightforowen.com and gwendolynstrong.com.... 46032@http://www.washingtonwatch.com Tue, 11 Nov 2008 03:40:46 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46029 Like so many suffering families, I too lost my daughter, Hannah Jean Campbell, to SMA. She was nine months old to the day. What happened to my daughter was the most horrible set of events I have ever experienced. I had to watch my daughter stop breathing in her own bed. Please help us help our children and allow us to dream of a future as a loving family, because not only do I have to relive my pain when I think of my daughter's struggles, I also have to constantly think about the fact that our next baby would have a 1 in 4 chance of having SMA as well. Please take the time to read about SMA and the children that it affects, you would then have no doubt that there needs to be a cure as humanly possible.... 46029@http://www.washingtonwatch.com Tue, 11 Nov 2008 00:22:52 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46023 SMA not only takes the lives of the children who have SMA, it takes the hearts and souls from their families and friends. Watching my little buddy Owen Shuler and his family battle this awful disease is enough pain for any human being to endure for a lifetime. While a cure will not bring Owen back it will help save others from the hell families like the Shulers have gone through. Please help us get this disease!... 46023@http://www.washingtonwatch.com Mon, 10 Nov 2008 22:27:08 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46017 The SMA Acceleration Act will bring life and joy to so many thousands of people (families and those afflicted) who are bravely suffering an intolerable, inhumane life. What could be worse than loving and nurturing your child, knowing that her days are numbered. One incredible family is documenting the journey so beautifully, and if you want to understand it better, go to www.gwendolynstrong.com These are 3 Strong Soldiers who are making a difference, and needing your help (quickly!)to complete the cure... 46017@http://www.washingtonwatch.com Mon, 10 Nov 2008 18:53:01 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46015 This Bill is really needed. There are so many families affected by this terrible ( currently ) uncurable disease. What a tragedy!... 46015@http://www.washingtonwatch.com Mon, 10 Nov 2008 18:35:27 EST http://www.washingtonwatch.com/bills/show/110_HR_3334.html#46011 PLEASE PASS bi-partisan HR. 3334 The SMA (Spinal Muscular Atrophy) Accelerated Treatment Act. SMA is the #1 genetic killer of infants under the age of 2 years old and 1 out of 40 people are genetic carriers. My niece, Gwendolyn Strong, was diagnosed with SMA Type 1 in April. This is a devastating and paralyzing disease. Mentally she is very bright and wants to play. Physically, she eats with a feeding tube, she can't swallow and thus has to be suctioned constantly, she can't hold her head up, she can't sit (although she wants to and is frustrated by that), and she is paralyzed in all but her arms (some SMA babies can't move their arms). Her parents give her round the clock care along with a night nurse. Cognitively she developing mentally like any other 1 year old baby. She endures a lot and does it all with a smile. Despite her disease she really enjoys what she can. With a cure she could live a long healthy life. Make a difference and save lives! Vote YES on HR.3334... 46011@http://www.washingtonwatch.com Mon, 10 Nov 2008 17:15:14 EST