http://www.washingtonwatch.com/bills info@washingtonwatch.com http://www.pjdoland.com/chai/?v=0.1 http://www.washingtonwatch.com/bills/show/110_PL_110-285.html#39088 My daughter was diagnosed with a neuroendicrine carcinoid tumor the size of a tennis ball inside the base of her tongue the day before her 15th birthday. Very rare tumor for a child and the unique location brought heavy challenges for the doctors. Chemo, major surgery, radiation. Tough times, but I still have my daughter. She also went to DC to lobby for this bill and is a HUGE Team Will supporter for Ride to Reach the Day. We worry daily. What if her tumor returns? We need help NOW! Visit www.curesearch.com get involved to find a cure for Childhood Cancer!... 39088@http://www.washingtonwatch.com Thu, 17 Jul 2008 15:11:35 EDT http://www.washingtonwatch.com/bills/show/110_PL_110-285.html#38511 In late 2006 a meeting was held in Houston between the FDA and the Burzynski Clinic to discuss the results of his phase II trial for Diffuse Intrinsic Brainstem Glioma which is the deadliest and rarest childhood brain tumor.The results were as follows.26 out of 110 children were symptom free at 2 years and 6 out of the 26 were symptom free at 5 years and considered CURED.This was far better than any results at any cancer hospital in America and the clinic asked for full approval.The FDA not only denied full approval but has ONLY NOW given approval to a amended version of phase III.Under the present system,if a very big jump in treatment is presented to the FDA it will take decades to get full approval and insurance coverage.... 38511@http://www.washingtonwatch.com Mon, 30 Jun 2008 07:41:47 EDT http://www.washingtonwatch.com/bills/show/110_PL_110-285.html#37038 My son was diagnosed with a primary sarcoma of the brain in July 2003, went through surgery, radiatoion and chemo - and then the cancer came back, so more surgery and chemo. Finally, he got AML and died June 29, 2005. We and the world are missing his wonderful presence on earth. We need more research to find out how to stop pediatric cancer!... 37038@http://www.washingtonwatch.com Thu, 12 Jun 2008 14:40:22 EDT http://www.washingtonwatch.com/bills/show/110_PL_110-285.html#30887 I am a cancer survivor of Luekemia A.L.L. I was diagnosed when I was just nine years old. I am now 17 and am fighting for this bill. I have been to DC twice in the past two years talking to congress and representatives about this bill and trying to get them to pass this bill. We can't do it alone, we all need to stand as one and get the word out there. I am ready to go marching through those doors and get this bill on the road. I know all to well what can happen when cancer isn't beat, someone looses a daughter, a son, a niece, a grandchild, a nieghbor, and so on. When will the pain and suffering come to an end? This bill needs to be passed now. There is a cure!... 30887@http://www.washingtonwatch.com Mon, 25 Feb 2008 16:07:58 EST http://www.washingtonwatch.com/bills/show/110_PL_110-285.html#24160 My daughter was diagnosed with a brain tumor @ 9 months old. Two weeks before her 1 st birthday, she underwent a nine hours brain surgery which left her with lifelong medical problems. This was followed by 1 1/2 years of chemotherapy. How many children have to suffer this way before research becomes properly funded? How many parents have to experience this pain before our goverment takes a stand? Please remember our story and fight for the "Conquer Childhood Cancer Act". Write to your congressman, spread the word, visit www.CureSearch.org. Innocent children are counting on us, we can't let them down!... 24160@http://www.washingtonwatch.com Tue, 04 Dec 2007 20:51:21 EST http://www.washingtonwatch.com/bills/show/110_PL_110-285.html#16313 My daughter was diagnosed with Hodgkins Lymphoma in 2005. She is in remission after a stem cell transplant. Clinical trials and research improve treatment outcomes for children with cancer. Families need access to new treatment options when others fail. To find causes, we must track incidences, and look for means to prevent the number one killer of children. My daughter is a survivor, not everyone is so forunate.... 16313@http://www.washingtonwatch.com Sat, 09 Jun 2007 23:02:59 EDT